不要著急。DKA雖然是重症，但是治療方法已經非常成熟。

1. When will be safe to bring her back to the US (hospitalization is China is very expensive)? How long approximately will it take for her blood sugar to be stabilized?

正如你後麵一句說的，直到血糖穩定後。DKA（酮症酸中毒）很好治，但是是重症，因為不積極治療可以導致嚴重酸堿/電解質紊亂，所以在美國這邊，絕大多數情況是進ICU（重症監護病房）治療。

多長時間因人而異，取決於身體對治療的反應，大多不會超過1-2周。

2. She is only 9-years-old. I worry about she forgets blood sugar monitoring, injecting insulin or have sugar pill whenever she needs and may endanger her life. Can a 9-years-old take care of her diabetes? What can I do? How about when she is at school?

在DKA期間，這是醫生和護士的責任，決不是病人的責任，更不是一個9歲病孩的責任。我不知道中國（或者你女兒所在醫院）的具體情況如何，讓一個未成年人照顧自己的疾病，而且是重病，是極其不負責任的行為。I型糖尿病的唯一治療方法是注射胰島素，目前還沒有口服藥物，這更不能讓小孩子來完成。

 

3. What is the best way for a parent to care a child diabetic patient to ensure her a healthy and happy life? Does pump help? Or is there an ultimate way to solve the problem, such as organ transplant?

目前最好的辦法是胰島素注射。胰島素泵是一個非常好的方法，你可以在你女兒病情穩定後向醫生谘詢，看她是否適合用胰島素泵。至於胰島B細胞/胰島幹細胞移植似乎還在實驗/起步階段，感覺上並不成熟。

  

4. Can a girl with diabetes have normal life, eventually get married and have normal babies? What would be different as a diabetic patient? Can she still have normal activities, exercises and go anywhere for travel?

可以，可以，可以。可以，可以。

對於I型糖尿病病人，一般發病年齡都較低，所以病程往往是幾十年。但是I型糖尿病病人可以過和正常人完全一樣的生活。關鍵的關鍵是關注自己的身體，就象每天刷牙洗臉一樣堅持查血糖，注射胰島素。如果平時不注意，血糖控製不理想，少則10年，多則20-30年各種各樣的並發症會接踵而至。

  

5. We have other children, both older and younger than her. How could we change our family schedule to help her, both physically and emotionally? Do we need to change family diet to a specific diabetic diet?

你的這個觀點非常正確：需要同時在生理和心理上關心和愛護病孩。你可以考慮參加一個“pediatric diabetes”的support group。相信裏麵的家長會有很多心得。 

 

6. What did we do wrong? Why she got diabetes so early in her life? Her other siblings are all healthy.

Nothing。I型糖尿病的發病原因至今不明，相當多的病例是在感冒症狀之後，有一種假說是“病毒感染”後，刺激自身免疫細胞攻擊胰島細胞導致的。

 

 

所有跟帖： 

• 才發現她已經進食了，那說明已經從ICU轉到普通病房了。 -惡俗老狼- ♂ (351 bytes) () 11/14/2011 postreply 19:29:00