急問 （兒童糖尿病I）：９歲女兒酮症酸中毒 Diabetic Ketoacidosis (DKA)住院。 如何應

急問 （兒童糖尿病I）：９歲女兒酮症酸中毒 Diabetic Ketoacidosis (DKA)住院。 如何應對？ 怎樣照顧I型糖尿病兒童？

Sorry, I am slow in Chinese input. Please allow me to type in English.

My 9-years-old daughter visited China three weeks ago and had cold/flu symptoms, such as vomiting, no appetite and lethargic. We took her to see doctors in hospital in China twice and she was treated as stomach upset and normal cold. The hospital even give her 葡萄糖點滴 (don’t know the English for it).

The third time we sent her to hospital, the hospital did blood and urine lab, both showed high sugar levels. Ketone was found in her urine. Her blood sugar lever was 38 (the normal range should be under 6). She was diagnosed with DKA 酮症酸中毒.

Now, she was further diagnosed with Type I Diabetes. We did not have a family history of diabetes and my daughter is in China. Now, she needs to monitor her blood sugar more than 10 times a day and have 4 insulin injections. Her blood sugar lever changes significantly before and after meal (6 to 8 before the meal and 13-16 after the meal).

My questions are:

1. When will be safe to bring her back to the US (hospitalization is China is very expensive)? How long approximately will it take for her blood sugar to be stabilized?

2. She is only 9-years-old. I worry about she forgets blood sugar monitoring, injecting insulin or have sugar pill whenever she needs and may endanger her life. Can a 9-years-old take care of her diabetes? What can I do? How about when she is at school?

3. What is the best way for a parent to care a child diabetic patient to ensure her a healthy and happy life? Does pump help? Or is there an ultimate way to solve the problem, such as organ transplant?

4. Can a girl with diabetes have normal life, eventually get married and have normal babies? What would be different as a diabetic patient? Can she still have normal activities, exercises and go anywhere for travel?

5. We have other children, both older and younger than her. How could we change our family schedule to help her, both physically and emotionally? Do we need to change family diet to a specific diabetic diet?

 

6. What did we do wrong? Why she got diabetes so early in her life? Her other siblings are all healthy.

Just feel overwhelmed and stressed out. If you are a doctor, a diabetic patient or know someone that has the similar experience, please share the insights with us. If you are a fellow parent, please give me some advice. Thanks!!

 

所有跟帖： 

• 醫療意見聽醫生的，關於一型糖尿病，我有一個朋友是十來歲的時候患上的 -viewfinder- ♀ (489 bytes) () 11/14/2011 postreply 19:04:07

• 網上有說法10歲左右最容易患一型糖尿病 -dudaan- ♂ (57 bytes) () 11/15/2011 postreply 10:57:07

• 1型基本都是打胰島素了。在美國可以搞個磅，隨時按照你血糖的需求來自動調整胰島素劑量。 -雲中飛燕- ♀ (0 bytes) () 11/14/2011 postreply 19:04:26

• 泵 -dudaan- ♂ (0 bytes) () 11/15/2011 postreply 06:08:15

• 不要著急。DKA雖然是重症，但是治療方法已經非常成熟。 -惡俗老狼- ♂ (14473 bytes) () 11/14/2011 postreply 19:18:44

• 才發現她已經進食了，那說明已經從ICU轉到普通病房了。 -惡俗老狼- ♂ (351 bytes) () 11/14/2011 postreply 19:29:00

• 除胰島素/泵外，I 型糖尿病治療新進展包括：胰島細胞移植，胰腺移植，幹細胞移植等等， -老道- ♂ (198 bytes) () 11/14/2011 postreply 19:45:48

• 老道要經常來屯裏逛逛，給咱多普及些最新進展喲。 -惡俗老狼- ♂ (26 bytes) () 11/14/2011 postreply 19:54:07

• 藥物治療上，近年來更加強調"tight control"，就是把血糖控製在更接近於正常的範圍之內， -老道- ♂ (89 bytes) () 11/14/2011 postreply 20:13:44

• 謝謝大家!!! -momof4- ♀ (35 bytes) () 11/14/2011 postreply 22:25:58

• 糖尿病不吃肉, 多吃素菜和粗糧, 自然就好. -我的天- ♀ (0 bytes) () 11/15/2011 postreply 07:31:11

• 幾點看法 -dudaan- ♂ (483 bytes) () 11/15/2011 postreply 10:36:05

• 我也是幾年前得的1型。 希望我的經曆對你有幫助。 -dou2mi- ♀ (7384 bytes) () 11/15/2011 postreply 10:58:18

• 祝福您的孩子。願她早日康複。多做善事多念藥師佛名號及藥師經，將功德回向給孩子。 -宛然- ♀ (0 bytes) () 11/15/2011 postreply 11:39:53