it is a very expensive drug too. see xxx

來源: tianyazi 於 2013-04-09 15:36:37 [] [博客] [舊帖] [給我悄悄話] 本文已被閱讀： 次 (461 bytes)
回答: 替堂妹問神經內科專家：Pompe disease 由 tiger00 於 2013-04-09 13:57:38
Try to find a Neurologist in a Children Hospital in USA.

If the family is not billionare, may forget it.

Google "best children hospital", you will find the top children's hospital.

The tops are:

1. Boston Children's hospital
2. Children's Hospital in Phildelphia
3. Cincinnati Childdren's hospital
4. Johns Hopkins Hospotial in Baltimore, MD
5. Baylor in TX.
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